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Yves here. The media, predictably, is missing a significant part of the real story about Ebola worries. On the one hand, the disease is not terribly contagious, yet coverage has been intense to the point of being hysterical about exactly who the Liberian patient in Dallas was in contact with before he died. Similarly, a reporter at CNN was up in arms about the current lack of screening of inbound passengers at international airports.
As Dr. CB pointed out via e-mail:
Was this reporter shocked at the lack of screening for SARS which has airborne transmission during the height of this epidemic? Did we call for flight bans to and from Asia? Why no outrage for the 8 SARS victims in America in 2003? Why didn’t Emory get any press time for treating 2 SARS patients in our isolation unit?
EBola is transmitted the same way as Hepatitis B and HIV. It is much less contagious than SARS. Very hard to pass it on by casual contact. with SARS you just had to sit next to the guy in the airplane. With Ebola, you have to suck face, handle their poop or vomit and blood. I don’t think airline passengers engage in this initmate way on a normal basis……….Ebola is currently following evolutionary microbiology as it goes from 90% to 50% mortality rate and thus is becoming more contagious. Remember, when a parasite kills its host too quickly and efficiently, it is muck less likely to spread around.
Viruses that become less and less deadly become more and contagious as the host is able to walk around and spread the parasite.
Yves here. Ebola has not caused great alarm in the past, precisely because it was such a speedily deadly disease. Thus, as CC stresses, perversely, if it becomes less of a death sentence on an individual level, it becomes a greater public health menace. While Ebola has a 90% mortality rate, the Spanish flu pandemic of 1918-1919, which killed 20 to 40 million people (more than died in the Great War), had a mortality rate of 2.5%.
However, we stressed that concern about Ebola should lead to more serious investigation of whether the US health system is able to handle the outbreak of a pandemic. Epidemiologists maintain that the outbreak of a pandemic is almost inevitable; it’s a matter of when, not if.
An earlier post discussed multiple reasons why our profit-fixaed system looked ill-equipped to respond to the need to respond to a massive outbreak. This post looks into a particular failure, namely, the handling of the first Ebola case in America, and how it exposes additional shortcomings in how hospitals are managed.
By Roy Poses, MD, Clinical Associate Professor of Medicine at Brown University, and the President of FIRM – the Foundation for Integrity and Responsibility in Medicine. Cross posted from the Health Care Renewal website
As discussion, if not outright panic, about Ebola infections increases in the US, it is still hard to figure out what heath care professionals and the health care system need to do to protect patients and the public in a very changed world.
One pressing question is how to identify people at risk of having the infection so as to best care for them, and to protect the public from further spread of the infection, without swamping the health care system, needlessly reducing civil liberties, or spreading further panic.
To better answer question, better understanding why the first patient who was diagnosed with and then died from Ebola in the US was initially not diagnosed might help. However, at this time, the whole thing seems mysterious. As a column published on October 7, 2014 in the Dallas Observer was entitled,
“Why Don’t We Know Yet Exactly What Happened When Our Ebola Patient Zero Appeared?”
On this blog, InformaticsMD was the first to speculate that problems with the design and implementation of an electronic health record (EHR) might have enabled the discharge of this patient, after he presented to the emergency department with non-specific symptoms soon after returning from Liberia. The next day, an official statement from Texas Health Resources seemed to confirm that a “flaw” in the hospital’s EHR prevented adequate communication of the patient’s travel history between a nurse and a physician. However, one day later, as InformaticsMD discussed here, the hospital reversed itself, releasing another statement that there was no “flaw” in the EHR. That statement, however, did not explain either why the first statement came out, or anything more about the diagnostic failure.
So, as the Dallas Observer column stated,
The question of why Duncan was sent home initially instead of isolated is still the most stubborn mystery in the saga of ‘Ebola Comes to Dallas.’
As columnist Jim Schultze explained, this question has implications for health care professionals and health care organizations who need to figure out how to best deal with the next patient who shows up who might or might not have Ebola.
If Duncan’s dismissal from the emergency room on his first visit was a bungle, then it’s reasonable to assume that everybody knows about the bungle by now and a similar goof is unlikely to happen again at any decent hospital in America. But if the handling of Duncan grew out of something more systemic, especially a business or management style or policy, then it may be less reasonable to assume the next hospital will be immune from the same issue..
In other words,
if the Eric Duncan mistake flowed from something more systemic, then we absolutely need to know what it was and how it happened so that we can look for the same problems everywhere else. If it was a non-medical problem, I can almost guarantee you it will turn out to be an issue not be unique to this hospital.
Mr Schultze is not the only one to point out the critical need to solve this mystery. He quoted
former Boston hospital CEO, Paul Levy, called on Texas Health to open up: ‘A failure by a hospital to be open about what went wrong in a major medical case such as this,” Levy said, “does a major disservice to everyone else in the health care industry.’
Similarly, the editor of FierceEMR wrote,
The Texas Health situation may be setting a dangerous precedent. This is a major world health crisis for which providers worldwide are trying to prepare. If truly the mistake Texas Health made in releasing Duncan was its mistake alone, so be it.
But if there really was a design flaw, then every provider–and every vendor–needs to know about it, evaluate whether it has the same problem, and correct it.
The patients deserve no less.
So far, to date, we have heard nothing more from the managers of Texas Health Presbyterian or its parent non-profit corporation, Texas Health Resources. It appears we need a reincarnation of Sherlock Holmes to solve this one.
Sifting a Few Clues
I am not he. But I do believe there are some clues, however, weak, that suggest system flaws. They can be found in an interview of the new Texas Health Resources chief operating officer (COO), Dr Jeffrey Canose, published in Healthcare Informatics a few weeks before Mr Duncan presented first to the Texas Health Presbyterian emergency department.
One of his points was that the hospital system is changing its emphasis from acute care to population health (however that may be defined),
we made the decision to become more of an integrated health system, and started to build the infrastructure for population health
The biggest challenge is to continue on our journey to increase our capabilities as a fully integrated health system; to develop the competency to be a high-performing system in the realm of population health management; to shift our focus from sick care to actually managing well-being….
Also, he referred to participation in the Pioneer ACO program as
one of our first significant efforts in shifting our focus from being acute-care-centric to being more focused on the full continuum of care
Recall Mr Schulze’s point that the failure to diagnose Mr Duncan could have been due to a business management style or policy. So maybe we have a clue that the hospital’s policy to reduce emphasis on acute care, including the emergency department, might have had to do with problems in the ED leading to a diagnostic misadventure.
In addition, Dr Canose noted,
the electronic health record is a huge enabler to all this; the next challenge will be to enable things further, including through data mining, working with big data, and clinical and operational support
around collaboration at the sharp point of redesigning patient care—… people in IT are mission-critical partners in hearing what kinds of problems we’re trying to solve, and in helping us to figure out how to drive clinical transformation and care design, and how to drive efficiency.
So maybe we have a clue that the management was very heavily intellectually invested in their health care information technology infrastructure, and perhaps thus less willing to think about how health care IT could be the cause, rather than solution of problems, such as diagnostic problems in the ED.
Finally, this may be just a hint, but Dr Canose spoke
We have a clear focus on continuing to elaborate the infrastructure we need in order to do population health management, and we’re continuing to build those capabilities over time, and explore ways we can deploy through our employed physician groups,…
This implies that many physicians who practice at Texas Health Resources hospitals are in fact its employees. We have at times written about the perils being a corporate physician. One is loss of autonomy, as physician employees become beholden to organizational managers. So maybe we have a clue that physicians’ loss of autonomy, perhaps the autonomy to put patients ahead of corporate policies and managerial edicts, such as those deemphasizing emergency care, could have enabled the failure to diagnose the Ebola “patient zero?”
We wrote earlier that the rise of generic managers as leaders of health care organizations degrade the US’ ability to deal with Ebola. In the mystery of the discharged Ebola patient, we seem to see the sort of managerial obfuscation that seems characteristic of many generic managers. More transparency from the management of Texas Health Resources would surely help the US deal better with the ongoing challenge of Ebola. In the long run, Ebola may teach us a hard lesson about the need to put health care leadership in the hands of people who understand health care, and subscribe to its mission to put patients and the public health first.